Future

What is the life expectancy of someone with sickle cell disease?

General

Is sickle cell disease contagious?

What is sickle cell disease?

Medication and sickle cell disease

Are children over the age of 12 with sickle cell disease no longer prescribed antibiotics?

Can sickle cell disease be cured through standard treatment methods?

Can you take hydroxycarbamide (Hydrea © or Siklos©) during pregnancy?

Can you take painkillers for a sickle cell crisis at any time of day?

Does a man who wants to have children also have to stop taking hydroxycarbamide (Hydrea © or Siklos©)?

How long before getting pregnant do you have to stop taking hydroxycarbamide?

What can you do against iron overload in case of sickle cell disease?

What exactly does hydroxycarbamide (Hydrea © or Siklos©) do?

Why do children under the age of 12 with sickle cell disease take antibiotics?

Why is it so important to take folic acid?

Why is pain relief so important during a sickle cell crisis?

Why will a sickle cell patient be prescribed hydroxycarbamide (Hydrea© or Siklos©)?

Occurrence of sickle cell disease

How many sickle cell patients are there in the Netherlands?

What is the link between the occurrence of sickle cell disease and malaria?

Where in the world does sickle cell disease occur?

Sickle cell disease and pregnancy

Can the fetus be tested for sickle cell disease during pregnancy?

How does sickle cell disease affect pregnancy?

What should you do when you want to have children?

Sickle cell disease symptoms and problems

Can you tell beforehand how sickle cell disease will develop in a specific case?

Does every sickle cell patient get the same symptoms and with the same level of severity?

What are common symptoms of sickle cell disease?

What is pica (unusual appetite)?

What organ-related problems can sickle cell disease cause?

The hereditary nature of sickle cell disease

How do parents pass the disease to their children?

How many sickle cell disease carriers are identified in the Netherlands every year?

What abnormality in the DNA leads to sickle cell disease?

What forms of sickle cell disease are there?

When is someone a carrier of sickle cell disease?

The problem with hemoglobin S

Having anemia, why do I get heart palpitations when I walk up the stairs?

How does sickle cell disease lead to pulmonary hypertension?

What causes problems when you have sickle cell disease, hemoglobin S?

What is a sickle cell crisis?

Why is it that sickle cell disease comes with (severe) anemia?

The role and structure of hemoglobin

How do the organs in the body receive oxygen (fuel)?

How does the body get rid of carbon dioxide (waste)?

How is the formation of sickle cells triggered?

Is hemoglobin in children and adults structured differently than in unborn babies and newborns?

What exactly does hemoglobin do in the body?

What is a hemoglobinopathy?

What is hemoglobin?

What is wrong with the hemoglobin in cases of sickle cell disease?

The sickle cell disease diagnosis

Can sickle cell disease be identified through a blood test?

How is sickle cell disease diagnosed?

What could be signs of sickle cell disease?

What is the benefit of including sickle cell disease in the heel prick test?

When do the first symptoms of sickle cell disease appear?

When is the heel prick test done?

Traveling with sickle cell disease

What should you do and think about after arriving at your destination?

What should you think about when going on a trip?

Treatment of severe sickle cell disease

Can a stem cell and bone marrow transplantation cure sickle cell disease?

How are severe cases of sickle cell disease treated?

What are the downsides of repeated blood transfusions for sickle cell disease?

What are the effects of an exchange transfusion?

What effect does a blood transfusion have on sickle cell disease?

What triggers an immune reaction?

When will treatment include blood transfusions or exchange transfusions?

Treatment of sickle cell disease; prevention, treatment, and support

Does eating acidic vegetables help against sickle cell disease?

How are pain and other symptoms treated?

How are sickle cell patients counseled and supported?

What can you do yourself? What are the possible health measures?

What check-ups will be done?

What does a healthy lifestyle for a sickle cell patient look like?

What does prevention consist of in case of sickle cell disease?

What is the treatment for sickle cell disease?

Which vaccinations are important for sickle cell patients?

Why are regular check-ups so important with sickle cell disease?

All subjects

Future

General

Medication and sickle cell disease

Occurrence of sickle cell disease

Sickle cell disease and pregnancy

Sickle cell disease symptoms and problems

The hereditary nature of sickle cell disease

The problem with hemoglobin S

The role and structure of hemoglobin

The sickle cell disease diagnosis

Traveling with sickle cell disease

Treatment of severe sickle cell disease

Treatment of sickle cell disease; prevention, treatment, and support